To Disturbed Computer...

     I'm so happy that Brilee got her heart transplant!!!! I hope all goes well with it and she is going to be ok now. My condolences go out to the family that lost their child. Organ donation is sooo very important. If I could... when I die I would donate all organs that could be donated when I die so that someone else could live. If only more people would donate their organs. I'm so happy for Brilee... Disturbed Computer. You've just put a smile on my face... and I don't smile that often. Thank you.

                                                                   The Cats Meow Mix  

Well said. I feel that if one dies from non infective or malignancy, nothing is lost and everything gained through organ transplantation. It's the right thing to do, person's faith permitting.

To Dr. JBHL...

     I have epilepsy... and now have MS. Is it possible to donate organs with MS since it is an immune system disorder. I would think not... what do you think. I am also the Universal Donor with O+ blood but am told I can't donate with all the seizure drugs I have to take. I recently wanted to try to be tested for a BMT but was also told no. I understand because of the MS. I wouldn't want her getting Graft vs. Host disease. I feel so bad that I cannot donate at least blood since I am the Universal Donor. I would like to donate my organs at least. With the MS can they be used? Is it possible?

                                                                                   The Cats Meow Mix

(Thank you all to the above posters)

To the Family who let there Child live on.. I know All the Families that you helped will always cherish your kindness.

I am so, deeply sorry for your loss.. Words can't express my thanks for your kindness, I know it had to be a very difficult decision to make, ultimately you know your child is living on in so many Children... 

To the Family:

Just remember she never really dies. For in our hearts her spirit lies.  
If she could talk I know she'd say mommy, daddy please don't cry for I am not gone I am flying high.  
I am that brand new twinkle in the sky.
I know one day I'll see you again, and until then hold your heads up high, remember I am standing by, for I am the light of the moon and the sunlight in the sky.  
So please be strong and it won't be long till we're together again..
We all love you little Angel...

Very ...... touching poem. Tugs at the heart strings.

I saved the poem. It is so beautiful.

People who have been diagnosed with multiple sclerosis cannot give blood. This is a blanket ban that applies to 'chronic conditions of unknown etiology' and includes a range of other conditions such as rheumatoid arthritis.

People with MS also cannot donate bone marrow. To join the NHS Blood and Transplantation Marrow Registry you have to be a registered blood donor. Although being a blood donor is not a requirement when registering with the Anthony Nolan Trust - a charity that finds bone marrow donors for people with leukemia and blood disorders - MS is also one of the excluded conditions on this register.

People with MS can be considered as organ donors.

The reasoning behind this distinction is based on the fact that the cause of MS is currently unknown. Until there is evidence to prove otherwise, it is considered sensible to avoid donations from people with MS when there may be something in the blood that is a contributing factor to developing the condition.

As an organ transplant requires the consent of the recipient, they can be informed of any potential risks before they make their decision. The availability of organs is also limited and so any potential risks are weighed against the the consequences of not proceeding with the operation.

In comparison, it is not possible to identify a donor at the point when the blood is being used, so any potential risks have to be screened out at the point of donation.

Hope this helps answer your question.

Update

brilees left lung collasped again so it will probably be a couple of weeks longer

Hang in there buddy. We're rooting for Brilee! And the rest of the family.

By disturbedcomputer at 2011-03-07

By disturbedcomputer at 2011-03-07

Brilee looks good DC. How is she doing? Better I hope.

Brilee looks great, DC... nice and pink! That's a very good thing.

thank you both

she is doing good ... Her left lung collasped again the other day (from my post yesterday) do to her new heart is just a tad bigger then her old heart so, it is making her Left Lung Collaspe, she will have to grow into her new heart.

DP

Jennifer Crippen the nurse lady was doing this treatment with a little machine thing for her lung were it shakes her chest and kinda bounces a little bit and well the nurse had it to close to Brilee's face and it her in the cheek i was so mad and cried...

By disturbedcomputer at 2011-03-10

hey you DAMN Nurse Be more careful Brilee has been through enough Heartache

Is Brilee on anticoagulants? A simple bump shouldn't cause that unless she were.... and in that case, it might have been such a light bump Brilee might hardly have noticed, DC.

Try to relax... soon she'll be bumping into things, flopping on her tush, then falling off her bike...

See? If it weren't for the transplant would those things happen? .... so maybe the bruises aren't so bad, right?

I do not know? will find out

Edit:

Jen just told me she has the list of meds and not sure if it is one but she did say Brilee was Srceeming after wards

jen is going to find out cause I told her I want to know !!

and Found out that they are going to put brilee back on the Oxygen just so she does not have to strugle breathing  but she is doing very good

Good!

Thank goodness for that.

No...

That is just such very cool news! God bless her! 

HOT DAMN!!! Way to go Brilee! So good to hear this DC. Give Brilee a big one for me. You guys, all of you deserve this.

good news!

WILL do thanks and thanks to all